I got ahold of Isaiah Jane’s MRI this morning and took it to the neurologist’s office. We were able to go through it slide by slide, in order to get an idea of what the radiologist meant by “subtle abnormality.”
Because I don’t have the software to read the disk, I’m unable to pull up the scan at home. The photo below is one I pulled from Google images, and it will give you an idea of the peeks I got of IJ’s brain. Keep in mind: when medical professionals refer to the “right” or “left” sides, they’re referring to a body as if it’s their own. Below is an example of right cerebellar hypoplasia.
Basically, the right side Isaiah Jane’s cerebellum is smaller than the other.
This is hopefully a congenital issue and will remain static. I’m brand new at this, but I’ve read enough at this point to give me an idea of what to expect. It’s not sunshine & rainbows. The prognosis is based on the type/cause, so we don’t want this to exaggerate as she grows. The cerebellum affects a whole host of functions and is referred to as the “movement control center.”
Her low muscle tone, eye crossing, and motor/cognitive delays are most likely due to that underdeveloped piece of her brain. It’s also safe to assume that her body has put weight gain on the back burner as a result, causing her small stature.
As far as a plan, there really is none. The treatment is “symptomatic and supportive” in nature, so we’ll just keep doing what we’re doing. Right now she’s being followed by a couple of specialists, undergoing physical therapy, and eating as much as she can. Down the road, we could receive a diagnosis related to a seizure disorder, mental retardation, cerebral palsy, autism, or plain old clumsiness.
My heart grows heavier by the minute, as I think about the possibilities and the ramifications. So for now, I’ll stop researching and just focus on loving my girl. The other day during Early Intervention, she pushed up onto all fours!
All I know is that where my daughter is small… my God is big.