The last of the health-related updates for awhile, I promise!
Last week, I met with a lactation consultant. She weighed IJ before and after nursing. We chatted while the girls ate, and she looked at their latches. She tested a sample my milk with this cool machine that made a lot of noise. Although it was on the lower end of the normal range (20cal/oz), my milk does not seem to be the problem. What a relief. I had been awfully down about the notion that I might have been starving my babies. The lactation consultant did encourage me to nurse the girls separately more often, though. They tend to distract each other when eating together, and their sessions get cut short.
We also had our Early Intervention intake last week. Isaiah Jane qualifies for physical therapy and a special “teacher” through their services, so we’re in the process of getting that set up. Anyone care to share their experience with this? I have no idea what to expect!
Both girls visited the endocrinologist this week, on a “failure to thrive” referral from our primary care doctor. Ames was very slow to gain weight during his first year, and the big boys’ mom has told me about similar issues with one of them. Still, we agreed to rule a few things out before we settled on the simple & likely idea that we just grow small babies. The endocrinologist was very kind, supportive, and respectful. Aside from their tiny stature, the only issues he noticed were the ones we’re already addressing with Isaiah Jane. They had some blood taken, in order to run a few tests. I liked the way he explained it – “Our bodies don’t really care about growth or weight gain. Those are the first things to go on the back burner if something else is going on.”
I missed a call from the neurologist early in the week and couldn’t get ahold of her for another day or two. My stomach was in knots because I specifically remember her telling me I wouldn’t hear from her unless something was up. When we did finally connect, she asked me to get a copy of Isaiah Jane’s MRI on disk for her to read. According to the report, the radiologist referred to “a subtle abnormality in the cerebellum.” This is the area of the brain that affects motor and coordination and whole lot of other things. She assured me we’d read the scan together (like I’ll know what I’m looking at) when we follow up with her later this month. She ordered a few more labs and encouraged me to ask questions. I couldn’t think of any. I still can’t, four days later.
We’re going to keep moving forward, getting answers, and loving our family.
A quick FAQ: – No, I haven’t seen Teen Mom but I hear there is a set of twins with similar issues. Lemme know if they figure out what’s wrong!
– I’m not really talking about it with people simply because I don’t know what to say. I don’t want sympathy and I don’t want speculation. I just want to take each day, one at a time.
Thank you for sharing in this journey with us! I’ll keep you updated as things develop, but this blog isn’t going to turn into a tiny twin pity party. In fact, I’ve got to sign off to address a few more pressing matters. My breastpump suffered an encounter with my water bottle today, and Lucas just popped into my room to show me some scrapes and bruises… from an ice skating date with an unnamed female middle school love interest. OH MY GOSH.